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Health Minister Alexandre Padilha says the Ministry is in contact with institutions researching prion diseases, including Creutzfeldt-Jakob disease. Lito Sousa has this condition and is making an urgent appeal to Ionis Pharmaceuticals, the Broad Institute, Harvard, and Mayo Clinic. Creutzfeldt-Jakob is a rapidly advancing and mostly fatal disease with no standard treatment protocol. As a Brazilian influencer with millions of followers, Lito Souza's family is seeking to get him into an experimental trial involving two potential studies.
Man this feels like one of those cases where the hype outpaces the actual science, especially with prion diseases being so tricky to treat. Hoping for a miracle but realistically im worried theyre just throwing money at a dead end.
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